Behind every diagnosis is a person with a whole life. This document introduces that person to anyone new to caring for them — their story, their preferences, what helps, what doesn't.
When someone enters a care facility, goes to hospital, or has a new carer, the clinical system captures everything about their condition — and almost nothing about who they actually are. Staff meet a file. They don't know that she was a teacher for thirty years, that he hates being called by his full name, that the music that calms her is always the same three songs, that he was funny — really funny — before the illness changed things.
This document fixes that. Fill it in once. Print it. Give it to every person who will care for your loved one. It takes about twenty minutes and it changes how they are treated for the rest of their care.
This section is for the human information the medical file doesn't capture. The things that make caring for this person better — and the things that can go badly wrong if staff don't know them.
CarerCompass is free and run by a GP in their spare time.
If it helped, you can support the project.